I am sure that we have all heard the phrase, "life is a journey". Some people's lives are more adventurous than others. Each of our journeys are different, but in some ways very much alike. We all have struggles and trials, periods of peace and despair, highs and lows. Our journey is filled with a wide gambit of situations,emotions and decisions. As a father of a special needs child, these all seem magnified. I have decided to share my journey with the world. My hope is to help everyone understand what our life is like and to encourage and maybe education other special needs families.
I guess the best way to start is to tell you about my son, Curt. He is 8 years old and loves life. Although he is non-verbal and non-Ambulatory, he is one of the happiest kids in the world. Shortly after he was born, we realized something was not right. It was discovered that he had cataracts in both eyes. They were preventing him from developing normally because he couldn't see. After corrective surgery, he was still not developing at a normal pace. He was then Diagnosed as being Globally Developmentally Delayed. Further testes showed that he has an X-linked genetic disorder that presents like Cerebral Palsy.
Starting now, I am committing to you the readers of this blog to share with you my feelings, hopes and experiences as a parent of a special needs child. Please feel free to ask questions. I may not have the answers, but maybe one of the other readers will. I believe the greatest asset we have is each other. Let's be stronger as we stand together.
I appreciate your efforts to educate people on children who need "extra" support. I appreciate family members who give their children as much support and interaction with others as they possibly can. Thank you.
ReplyDeleteunderstand where MY Brother Joseph is coming from..I to have a special needs child his name is Casey Adam and is nine years old. Like Curtis he is non verbal and non ambuatory. While Curtis was still in the woumb we were already dealing with a special child. A child whom changed my life forever. I also have an older child as well as a younger child. I have the best of both worlds so to speak. I will add that the jorney we have been taking as fathers of special needs children has been a rocky one. I know from experiance what it feels like to not know if your son is going to die or not. I understand what it feels like to not have any control over the care and actions my son has at times. The Auther of this Blog cares for my son quite often while we are away at work. So in a since he has two special needs children. I will make no mistake by saying I am not in this jorney alone. I have a wonderful family support group to help along the way. First of which is my wife Ashley. She is a wonderful careing woman whom attends to Casey alot, My other two children Logan and Kyle (maybe they are small but they do big big things). My Mother, Father, Brother, Sisterinlaw, Mother and father inlaw are all a great part of our support group. With out them this Father's jorney would not be as bright and joyful as it seems here. Thank You
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